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Annual Report: FY01
Continuum of Care Project
Through June 30, 2001
(Note: activities occurring since mid year report are
noted in bold lettering)
OUTCOME 1 – EDUCATION OF MEDICAL STUDENTS, RESIDENTS,
GRADUATE STUDENTS AND FACULTY:
Activity #1: Continue to arrange and/or deliver
learning experiences on developmental disabilities to medical students
and nursing students at UNM/HSC, throughout the fall and spring
semesters. This activity will be directed to the departments of Family
Practice, Psychiatry, Neurology and Pediatrics as well as the College of
Nursing.
- Continuum of Care continues to contract with Parents Reaching Out,
Families As Faculty Project to assist with the Family Practice
rotation on DD for Phase II medical students. PRO has assigned a new
project director, Marilyn Fuller for this initiative as of 8/21/00 and
she came to meet with Jennifer Thorne-Lehman on 11/2/00 regarding this
transition and refinements of that curriculum. In addition, our new
medical regional consultant for Metro, Toni Benton M.D. has recently
replaced Kerrie Seeger M.D. as faculty for this rotation. This
rotation occurs every 8 weeks, with 10-15 medical students in each
rotation. The rotation consists of an orientation to family centered
care and a discussion of biases or pre-conceived ideas the students
may be bringing with them about different types of disabilities. The
students are then matched with a family who has a child with DD, with
whom they schedule a home visit. Following the home visit the students
must write a reflection paper, which describes what they learned from
the home visit experience, including family strengths, coping skills
and implications for their future practice. All students then
participate in a "debriefing" discussion regarding their
visits so they can expand their learning by sharing the variety of
experiences with each other. At this session Ms. Fuller and Dr. Benton
can reinforce key competencies which are:
- Demonstrate a communication style that is sensitive and responsive
to the family,
- Articulate the strengths and individualities of the family you
visited, and describe some of the family’s coping strategies,
- Recognize and acknowledge your own biases and beliefs so as not to
impose those on families or people with disabilities,
- Look beyond individuals’ diagnosis to life at home and in the
community.
Due to various unfortunate circumstances, including
the departure of Ms. Fuller from PRO, we are in the process of working
with PRO, Family Practice and Pediatrics to revamp this rotation. Home
visits are suspended, until such time as the redesign is complete. Key
stakeholders are meeting 8/29/01 to continue work on this.
- As in previous years, on December 13, 2000, Jennifer Thorne-Lehman
presented a half-day seminar to family nurse practitioner students
that covered topics listed below. (In addition a representative from
Parents Reaching Out presented on the elements of family-centered
care.)
- An overview of the DD service system.
- Eligibility criteria for early intervention, how to refer, the
benefits of early intervention services, importance of
developmental screening and early referral.
- Transition issues for adolescents and importance of applying for
the DD Waiver as soon as the child starts high school if not
earlier.
- Role of various members of the Interdisciplinary team,
especially as it relates to interaction with healthcare providers
- Technical assistance resources available to healthcare providers
regarding the DD population including Continuum of Care Project,
TEASC, CDD programs, UNM genetics and dysmorphology, etc.
- Dr. Aceves served as attending physician (supervising residents)
for pediatric ward July 5-11, 2000 and in the newborn nursery July
17, 18, 29, & 30.
- Dr. Aceves tutored medical students twice per week from September
5 to October 27, 2000.
- Dr. Reeve presents to Phase II medical students on conducting
mental status assessments with patients who are non-verbal, along
with some key issues in psychiatric care for patients with DD. This
occurs every other month.
Activity #2: The CONTRACTOR shall present
on developmental disability topics during at least one "Grand
Rounds" session at UNM/HSC.
- Grand Rounds for Indian Health Service regarding services available
through Continuum of Care Project on August 17, 2000.
- Grand Rounds at Los Alamos Medical Center on Down Syndrome August
23, 2000.
- Grand Rounds for Ben Archer Clinics (SW part of the state) October
25, 2000.
- Dr. Vickers presented a noon lecture for the Department of
Pediatrics on "Coma and Brain Death" on 8/30/00.
- Presented on the medical home concept at Pediatric Grand Rounds on
2/8/01.
- Dr. Bouquin, NW Regional Medical Consultant, presented
"Overview of DD in New Mexico" at grand rounds in Los Alamos
on 5/22/01.
- Dr. Bouquin presented at grand rounds in Tucumcari and Santa Rosa,
in collaboration with Early Childhood Evaluation Program on DD related
issues on March 27, 2001.
Activity #3: The CONTRACTOR shall
participate in the LEND Project. This project is dedicated to the
training of graduate students from ten different disciplines on issues
pertaining to developmental disabilities. The project also provides
supervision of social work students.
- Alejandro Moralez participates as LEND faculty representing social
work; supervising & mentoring graduate level social work student,
facilitating Problem Based Learning cases, presented on Facilitating
for Results and Cultural Diversity during the fall semester, conducted
PATHs for LEND students & faculty and community agencies involved
with LEND.
Activity #4: The CONTRACTOR shall provide
opportunities to medical and nursing students to participate in
specialty clinics through this project.
- LEND fellows observe the SAFE clinic once per month, and most SAFE
clinics also have at least one community therapist attending to
receive professional guidance/consultation regarding feeding issues.
- Two
Physicians’ Assistant students rotated through all
of our specialty clinics.
- One Neurology student rotated with Dr. Vickers this fall as an
elective.
- Neurology residents rotate periodically with Dr. Vickers as well as
Drs. Phillips and Morrison at Carrie Tingley.
- One medical student elected to attend an Adult Special Needs Clinic.
Activity #5: The CONTRACTOR shall
encourage and assist students/residents to participate in research
related to individuals with developmental disabilities, as part of their
course of study, in collaboration with Continuum of Care faculty.
- I am not aware of any research during fall semester, but will poll
our physicians and update this item in the next report.
Activity #6: The CONTRACTOR shall provide
coordination to expand these activities to other UNM/HSC departments,
including allied health professions, other nursing schools, and/or
emergency services personnel (EMTs).
- Dr. Burke delivered a lecture on "Politics of Women’s
Healthcare" at NMSU on 11/28/00.
- Dr. Vickers presented a lecture for PT and OT students on management
of chronic headaches.
Activity #7: The CONTRACTOR shall continue
to support the development and delivery of learning experiences, related
to services for individuals with developmental disabilities, for
residents assigned to clinics throughout New Mexico.
- Multidisciplinary team tutoring via consultation clinic at La
Familia family practice residency program November 30, 2000. Dr.
Aceves, Dr. Vickers, and Carla Fedor RN from our office participated
along with the NW regional medical consultant Erin Bouquin MD.
- Delivered CCM seminars at Family Practice Residency Program in
Roswell July 12th and October 4th, 2000 and April
25, 2001.
- Dr. Witemeyer presented to Psychiatry Residents at UNM on the Autism
Clinics (child and adult).
- Neurology residents rotate periodically through Dr. Vickers adult
and pediatric clinics as well as other clinics at Carrie Tingley.
- Delivered CCM seminar in at Las Cruces Family Practice Residency on
2/14/01, with special emphasis on patients with autism.
- Dr. Reeve serves as attending physician for psychiatry residents.
- Conducted Problem Based Learning POL session with residents at La
Familia clinic on 4/11/01 on the topic of health decisions. POL
sessions always include a brief presentation followed by relevant case
discussion.
Activity #8: In collaboration with the DEPARTMENT,
the CONTRACTOR shall identify opportunities to provide meaningful
work and fair payment for individuals with developmental disabilities.
Self-advocates who provide training to physicians and Interdisciplinary
teams, via contract, will be reimburse at a rate of $l0.00 per hour; if
travel and/or purchase of special materials is required the hourly
reimbursement rate will be $l5.00 per hour.
- We have a contract in place with RCI to pay a consumer to serve as
greeter for the Adult Special Needs Clinic twice per month.
- We have a contract in place with a consumer to provide us with
assistance in developing materials for patients with DD and provide
input on consumer perspective in delivery of healthcare.
OUTCOME 2-TECHNICAL ASSISTANT TO STATEWIDE
PRACTITIONERS. Existing practitioners throughout the State of New Mexico
will have access to specialized technical assistance related to the
provision of health services to individuals with developmental
disabilities.
Activity #l: The CONTRACTOR shall continue
to offer and deliver between three and six, "Chronic Conditions
Management Training" sessions in clinics statewide. The CONTRACTOR
agrees to provide Continuing Medical Education credits for these
sessions. The DEPARTMENT agrees to meet with the CONTRACTOR
twice annually to identify sites.
- CCM delivered at Family Practice Residency program in Roswell on
July 12, 2000 and again on October 4, 2000. Dr. John Phillips from
Carrie Tingley Hospital, Elizabeth Ceysens RD, and Lourie Smith SLP
participated in these sessions (Continuum of Care paid for their
travel to present). A third CCM was delivered in Roswell on 1/17/01
where Alejandro Moralez presented on transition considerations, Dr.
Reeve presented on Self-Injurious Behavior and Traumatic Brain Injury,
one patient case was discussed in conjunction with these topics.
- CCM delivered at San Juan Pediatrics in Farmington July 21, 2000.
Drs. Aceves and Vickers presented along with Judy Liesveld CNP
(regional medical consultant for NW region) and Jennifer Thorne-Lehman
- We have received a request to conduct a CCM this spring for the
clinic in Embudo, NM which serves several patients who live at Santa
Maria El Mirador. Scheduling arrangements are in process. Our regional
medical consultant for the NW region, Erin Bouquin MD had made them
aware of this opportunity. To date, we have not been able to
schedule with them.
- February 14, 2001 we conducted CCM at Las Cruces Family Practice
Residency Program, with special emphasis on patients with autism.
Activity #2: The CONTRACTOR shall
collaborate with the Transdisciplinary Evaluation and Support Clinic (TEASC)
in the publication of a bi-annual newsletter for physicians throughout
New Mexico that will also be available on the continuum of Care web
site.
- Winter 2000 issue covered Women’s Health, SAFE Clinic and overview
of all clinics available through TEASC and Continuum of Care.
- The second issue was begun, but not finished in time to send out
prior to end of the fiscal year. We expect publication this summer.
Activity #3: The CONTRACTOR shall respond
to requests for information/consultation on an ongoing basis, utilizing
Regional Consultants whenever possible.
- In order to increase the capacity and utilization of Regional
Medical Consultants we began having regular meetings so that the
consultants can network and plan. Dr. Witemeyer has taken the lead in
coordinating the activities of the Regional Medical Consultants
including arrangements for the quarterly meetings and collecting data
for monthly reports. Meetings occurred June 9, 2000, November 10,
2000, February 2, 2001 and March 30, 2001.
- Dr. Aceves was interviewed on a talk show for a Spanish radio
station on August 24, 2000.
- Dr. Aceves conducted a patient consultation on August 30, 2000.
- Dr. Aceves consulted with Dr. Ciudad regarding medical home issues
on October 25, 2000.
- As Regional Consultant for Metro, Dr. Witemeyer arranged and
presented with Dr. Reeve on medical conditions in adults with DD at
the First Choice Clinic in Albuquerque’s south valley.
- Dr. Burke provided consultation regarding 4 patients to a
pediatrician in Las Cruces, and consultation to three other
pediatricians in the SW. Provided consultation at the Las Cruces
homeless clinic regarding DD patient there.
- As Regional Consultant for Metro, Dr. Witemeyer consulted with seven
different physicians regarding ten different patients with
developmental disabilities between July 1, 2000 and January 29, 2001 and
with nine different physicians between February 1 – June 30, 2001.
- As Regional Medical Consultant for the NW, Dr. Bouquin provided
consultation to three physicians regarding four different patients
with DD. Dr. Bouquin made arrangements for PCP to refer two of these
patients to Adult Special Needs Clinic for evaluation. She also made
arrangements for Debra Hall MD to provide technical assistance to the
clinic in Embudo. Consulted with Dr. Burke regarding a patient who
will be moving from Alamogordo to Espanola upon her graduation from
the NMSVI spring 2001.
Activity #4: The CONTRACTOR shall develop
curriculum on specific topics, as indicated by trends in requests for
information/consultation and/or at the request of the DEPARTMENT.
- Dr. Aceves presented on "Life Span Issues in DD" at the
annual DDNA conference on November 17, 2000. Jennifer Thorne-Lehman
presented on Health Decisions and Advance Directives at this same
conference. Carla Fedor and Analissa Watkins coordinated planning and
arrangements for this years DDNA conference.
- In collaboration with TEASC, developed workshops on mental health
issues in DD population. The first workshop was held in Roswell on
4/27/01 and was attended by 11 persons, including 3 counselors. Most
persons in attendance were case managers and community program
supervisors. Topics covered include 1) distinguishing between medical
and psychiatric causes of challenging behavior, 2) supporting people
with DD through the grief process, 3) helping people with DD manage
stress, 4) Trauma Spectrum Disorders, 5) how to access mental health
services in New Mexico. This workshop is scheduled to be presented in
Farmington on 7/27/01, except that Anxiety Disorders will be covered
instead of Trauma Spectrum. The Trauma Spectrum Disorders presentation
was video taped, as will be the session on Anxiety Disorders.
Activity #5: The CONTRACTOR shall make
curriculum and job tools available on the Continuum of Care Project web
site, as appropriate.
- All power point presentations made by Continuum of Care are placed
on our website.
Activity #6: The CONTRACTOR shall continue
to participate in specialty clinics as a source of consultation and as
training sites as follows:
- Adult Special Needs Clinic in collaboration with TEASC will be
provided ½ day, twice per month (three-six patient appointments are
available in each clinic, depending upon complexity and no shows),
- Neurology and dietician support to Westside Special Needs Clinic
and Presbyterian Family Practice in Belen, on a quarterly basis,
- Pediatric and Adult Neurology Clinics for individuals with
developmental disabilities on a weekly basis,
- outreach Neurology Clinics in Roswell every other month and in
Clovis on a quarterly basis,
- Provide support of a Physician and a Dietician to the Supports and
Assessments for Feeding and Eating (SAFE) Clinic, two days per
month.
- Consultation to develop and/or maintain additional specialty
clinics will be provided as appropriate, pending availability of
Continuum of Care resources.
- Adult Special Needs Clinic was held in collaboration with TEASC on
the 2nd and 4th Thursday morning of each month.
Continuum of Care staff that regularly participate are Sharon
Witemeyer MD, Jennifer Vickers MD, Alejandro Moralez LISW, Analissa
Watkins LPN, and Jennifer Thorne-Lehman MA.
- Under Dr. Witemeyer's leadership, on July 27, October 26 of 2000,
January 25, 2001 and April 26, 2001 Adult Special Needs
clinics were devoted to adults with, or suspected of having Autism.
We intend to continue these Adult Autism focused special needs
clinics on a quarterly basis. On Autism dates, Alison Reeve MD also
participates along with several staff from the SW Autism Network and
Jim Jensen MD from the Department of Psychiatry. (Note: via funding
from CDD, Dr. Witemeyer also provided physician services to the
Children’s’ Autism Clinic every Tuesday July – December.) It
should be noted that Dr. Witemeyer conducted multiple meetings and
phone calls to plan and implement this specialty clinic. In
March, Dr. Witemeyer developed a specific intake form and patient
handouts for the Autism clinic. She also prepared and disseminated a
"press release" advertising the availability of this
clinic.
- Dr. Witemeyer has participated in 13 SAFE clinics between July 1,
2000 and January 30, 2001. Two of these were conducted via
Telemedicine. Also in conjunction with SAFE clinic preparation and
follow up, Dr. Witemeyer conducted phone consultations on 3 SAFE
patients. Dr. Witemeyer participated in 11 SAFE clinics between
February 1 – June 30, 2001. Judy Liesveld CNP, our Regional Medical
Consultant for NW Region, assisted with a telemedicine SAFE evaluation
on 2/16/01 in Gallup.
- In collaboration with TEASC, we have supported Dr. Rick Madden in
providing a monthly special needs clinic to patients of Presbyterian
Family Practice in Belen. Continuum of Care staff that have regularly
participated include Carla Fedor RN, who coordinates the clinic,
Sharon Witemeyer MD, and Jennifer Vickers MD; also via contract Mary
Swift RD. Staff who has occasionally participated, depending upon
patient identified needs include Alison Reeve MD and Jennifer
Thorne-Lehman.
- Carla Fedor RN coordinates Dr. Vicker’s weekly pediatric
neurology clinics, including the Ketogenic Diet clinic held one
Tuesday of each month. This is the only Ketogenic Diet clinic in the
state of New Mexico and is much in demand.
- We had lost our space in Roswell for conducting Dr. Vicker’s
Neurology outreach clinics, but Analissa Watkins LPN was able to make
temporary arrangements to hold one on 10/27/00. Beginning January 2001
we are contracting with the Family Practice residency program in
Roswell for space to hold this clinic every other month and thus
additionally give the family practice residents there an opportunity
to participate and learn more about seizure management.
- Dr. Vickers conducted Neurology outreach clinic in Clovis on 8/3/00
and 10/14/00.
- Dr. Vickers and Mary Swift continue to participate in UNM Westside
special needs clinic on a quarterly basis.
- Dr. Witemeyer represented Continuum of Care at a meeting with
representatives from CDD and UNM/HSC Neuro-Psych Department regarding
how to best share resources for clinics.
Activity #7: The CONTRACTOR shall
collaborate with TEASC, Salud! Providers and BHOs, the DEPARTMENT
and other UNM Health Science Center Departments to enhance availability
and quality of statewide psychiatric care for individuals with
developmental disabilities. This shall include technical assistance and
consultation to BHO network providers.
- Training for BHO providers was offered, but they did not choose to
take advantage of this opportunity during Fall 2000, probably because
of proposed return to fee for services system this spring. Continuum
of Care has discussed with LTSD and HSD/MAD our need for assistance in
recruiting an audience for this training.
- MI/DD clinic is fully operational on a weekly basis at UNM/MHC. Drs.
Reeve and Williams deliver psychiatric services through the clinic and
UNM/MHC hired a nurse coordinator which was trained by Analissa
Watkins LPN, Continuum of Care’s clinical coordinator, during the
early fall. Patients access this clinic via intake through UNM/MHC
General Clinic.
- Dr. Reeve met with Jeff Gonzales M.D. and his staff on 4/9/01 at his
private psychiatric practice in Taos. Dr. Gonzales also works and the
Community Mental Health Center in Taos. The purpose of the session was
to familiarize them with supports available through Continuum of Care
Project and with key considerations of serving the DD population.
- On 6/29/01, Dr. Reeve, Jennifer Thorne-Lehman, and Helene Silverblat
from TEASC, met with representatives of BHSD to inform them of
supports available through our projects and to begin discussions of
how to improve access to quality mental health services for the DD
population. BHSD agreed to generate a report from their data base to
determine how many patients with DD are seen through State funding at
Community Mental Health Centers. They also agreed that their Regional
Care Coordinators need to be informed of supports available through
our project and through DD Waiver. Paul Schwalje was in attendance
representing LTSD.
Activity #8: The CONTRACTOR shall inform
community medical practitioners of multidisciplinary resources and
availability of technical assistance and training opportunities on a
quarterly basis. The CONTRACTOR shall provide scholarships for
training opportunities so that medical professional scan enhance their
knowledge and skills related to patients with developmental
disabilities. The CONTRACTOR shall also advertise availability of
training, technical assistance and scholarships, on the Continuum of
Care and Long Term Services Division web sites.
- Continuum of Care provided scholarships for the following health
professionals to attend continuing education related to individuals
with disabilities:
- Jane Pitts MD – "Developmental Disabilities - A Primer for
Primary Care Providers" in San Diego, July 26-29, 2000.
- Catherine McClain MD – "IASSID World Congress" in
Seattle, July 31 to August 3, 2000.
- Judy Ledman MD – "IASSID World Congress" in Seattle,
July 31 to August 3, 2000.
- Pamela Arenella MD "The Many Faces of Autism: Meeting the
Challenge Through Teamwork" in Albuquerque November 3&4,
2000.
- Pennye Thompson RN – "Psychotropic Medications" in
Albuquerque 11/29/00.
- Kathline Burke MD – "Developmental Disabilities – A
Primer for Primary Care Providers" in San Diego, July 26-29,
2000.
- Erin Bouquin MD – "AACPDM" in Toronto September 20-23,
2000.
- Rosemary Gallegos and Amy Osborne (counselors) – Play Therapy
Conference – Westminster, Colorado – March 8 – 10, 2001.
- Patricia Lilley (SLP at SAFE clinic) – Spectrum of DD XXIII –
March 26 – 28.
- Pennye Thompson, Yvonne Marquez, Arabella Gallegos – DDNA
Conference March 5 – 8, 2001.
- Paulette Whalen (couselor) – Sand Tray Training Institute –
Corrales, NM – May 10 & 11, 2001.
- An annual subscription to "Mental Health Aspects of DD"
was provided to George Baca MD, a psychiatrist in Valencia county,
beginning March 2001.
Activity #9: The CONTRACTOR shall
participate on the Center for Development and Disability Library
Committee to assure collection meets the needs of medical practitioners
and Interdisciplinary team members regarding medical issues of
individuals receiving long-term services, throughout the life span.
- Project Coordinator, attended all meetings, gathering
input from Continuum of Care staff and reporting back to the CDD
Library Committee as needed.
Activity #10: The CONTRACTOR shall
continue to assure that the expertise and skills of the staff of the
Continuum of Care Project remain on the cutting edge, by arranging for
ongoing staff development and by assuring ongoing service delivery to
patients via specialty clinics.
- Dr. Aceves participated in the following activities for this
purpose: Attended Society of Developmental and Behavioral Pediatrics
conference in Providence Rhode Island September 23-25, 2000; attended
NM Pediatric Society meeting in Taos on October 20, 2000; attended and
presented at NADD conference in San Francisco on November 2-5, 2000;
attended PALS training at UNM/HSC on November 10, 2000; attended
pediatrics clinic on November 11, 2000; attended local chapter of AAMR
on November 15, 2000. Attended National AAMR convention in Denver
May 30 – June 1, 2001. Attended a symposium on Social Engagement on
4/23/01.
- Dr. Witemeyer – Regional Medical Consultant for Metro,
participated in the following activities for this purpose: meeting
with Dr. Andy Hsi regarding MPH July 28, 2000; on-line OSHA training
August 25, 2000; "Doctor I Just Don’t Feel Well!" Managing
Migraine and IBS September 16, 2000; AACPDM annual conference in
Toronto September 20-24, 2000; "End of Life Care: Cultural
Diversity in NM" November 13, 2000; Attended and presented
"A Report of Outpatient Psychiatric Care for Persons with Dual
Diagnosis (MI/MR)" at NADD in San Francisco November 2-5, 2000;
AAUAP Children’s SSI Project conference in Chicago November 15-17,
2000; Ethics Law & Medicine grand rounds January 19, 2001;
attended local chapter of AAMR meetings on July 11, September 12 and
November 14, 2000, March 13 and June 12, 2001; UNM General
Faculty Meeting August 24, 2000. 2/28/01 attended CDD Day on
Cultural Competence, 4/29/01 – 5/6/01 attended YAI in New York,
where our Regional Medical Consultants presented on their role here in
New Mexico (Dr. Bouquin, Dr. Benton and Judy Liesveld also attended),
6/1/01 attended "The Many Faces of Grief", and on 6/22/01
attended "Medications, Sensory Issues, and Jobs for People with
Autism", by Temple Grandin in Albuquerque.
- Dr. Burke – Regional Medical Consultant for the SW and SE regions
participated in the following professional development activities:
Readings: "Primary Care of the Child with Chronic
Conditions", recent articles on Tourette’s Syndrome, materials
on cultural diversity working with families who have members with DD;
CME: Neurology update, Autism conference, PTSD update; Clinical Neuro-Sciences
conference in October 2000; Networking meetings: CMS medical advisory
committee, P&A advocate regarding intervention in DPS, meeting
with other regional medical consultants at regularly scheduled
meetings (July, November and Feb). Attended Temple Grandin talk on
Autism 6/22/01.
- Carla Fedor RN has begun working toward becoming a Certified
Developmental Disabilities Nurse. She is studying materials in
preparation for the test in May 2001. Ms. Fedor attended the
National DDNA convention in Florida May 3-8, 2001, where she passed
the test, and is now a Certified Developmental Disabilities Nurse!
She attended as well as presenting with Drs. Witemeyer and Reeve at
the NADD conference in San Francisco in November 2000. She also
attended the Clinical Neuro-Sciences conference in Albuquerque October
5-7, 2000.
- Analissa Watkins is taking college pre-requisites in order to apply
for the Physician Assistants program which she hopes to begin in
spring 2002. She also attended the NADD conference in November and the
Clinical Neuro-Sciences Conference in October, 2000. Ms. Watkins
also attended the National DDNA convention in Florida, and the Temple
Grandin talk on Autism in Albuquerque.
- , Program Coordinator attended quarterly AAMR chapter
meetings; the NADD Conference in San Francisco in November 2000; and
the End of Life Care: Cultural Diversity in New Mexico conference on
11/13/00, National AAMR convention 5/29/01 – 6/1/01.
- Valerie Ford attended the SPIDR international conference in
Albuquerque in September 2000; attended 2 Marshall Rosenberg
Non-Violent Communication Model Workshops; read several books and
articles on mediation, conflict resolution and ethics; Began module 1
of the UNM/HSC Bio-medical ethics certificate program on 1/27/01.
- Dr. Reeve & Dr. Vickers attended the National AAMR convention in
Denver May 29 – June 1, 2001.
- Dr. Vickers studied for and passed her boards, and is now a board
certified Nuerologist.
- Alejandro Moralez attended the NM NASW conference for social workers
2/21 – 23/01. Attended workshop on sexual victimization on 3/9/01
and Temple Grandin talk on autism 6/22/01.
- Jennifer Thorne-Lehman attended the SPIDR international conference
in Albuquerque in September 2000; the Clinical Neuro-Sciences
conference in Albuquerque October 5-7, 2000; Pediatric Grand Rounds on
Medical Care for Patients who are Deaf or have Hearing Impairments
2/15/01; Ethics, Law & Medicine Grand Rounds on 2/16/01; Begin the
UNM/HSC Bio-Medical Ethics Certificate Program on 1/27/01 – module
one will go weekly through March 31st, with module two in
the fall of 2001. Attended National AAMR convention May 29, 2001
– June 1, 2001; attended Temple Grandin talk on Autism 6/29/01.
- Continuum of Care has instituted in-service topics periodically at
staff meetings (to which we invite TEASC staff). Jennifer presented on
Instructional System Design on July 19, 2000; Dr. Witemeyer and Dr.
Reeve presented on Autism on August 23, 2000; Jennifer gave an
overview of the DD service system September 20, 2000. Dr. Reeve
presented on the proposed AAMR definition of mental retardation
October 18, 2000. 4/4/01 and 4/18/01 Valerie Ford presented on
conflict resolution strategies.
OUTCOME 3 – TECHNICAL ASSISTANCE TO INTERDISCIPLINARY
TEAMS. Interdisciplinary teams that support individuals with
developmental disabilities shall have access to ongoing opportunities
for technical assistance to enhance the availability of physical and
mental health services for individuals.
Activity #1: In collaboration with TEASC, the CONTRACTOR
shall develop and disseminate reference manuals related to the
management of medical and mental health issues in persons with
developmental disabilities. The materials will be made available through
the web site with hard copies available to each regional office. The
purpose of the manual is to support community program supervisors in
providing on the job training of direct care staff in accordance with
Addendum B of the Individual Service Plan. Table of contents will be
negotiated with the LTSD Training Unit. Priority content will be on the
web site by l2/2000. Phase II content by 6/2001. A Trainer Certification
Session, in the use of the web based reference manual, will occur
2/2001. The CONTRACTOR will coordinate with the LTSD Training
Unit for review and approval of content prior to dissemination of
materials.
- Priority topics of asthma, aspiration pneumonia, COPD, GERD,
osteoporosis, hypoglycemia, hypo and hyper thyroidism, diabetes,
inflammatory bowel disease, dementia, psoriasis, acne, depression,
eczema, are completed and went "live" in both the training
and resource section of our web page (http://www.unmcoc.org/coc).
Additional topics added since February include fungal skin
disorders, inborn errors of metabolism, aspiration pneumonia, grief,
depression, congenial rubella syndrome, down syndrome, autism, spina
bifida, sturge weber syndrome, and tourette syndrome.
- In collaboration with LTSD Training Unit and TEASC a
train-the-trainer session for individuals responsible for implementing
Addendum B training was conducted in Roswell on 10, 2001 on how
to use this site. A second session is scheduled in METRO for
7/10/01.
Activity #2: The CONTRACTOR shall provide
support to teams responding to findings of the community quality system
review, upon request of the LTSD Regional offices and/or individual
interdisciplinary teams. The CONTRACTOR shall utilize Regional
Consultants for this activity, whenever possible.
- In response to concerns about compliance with regulations for Crisis
Prevention Plans, Carla Fedor RN, with assistance from Analissa
Watkins LPN and Jennifer Thorne-Lehman developed training for nurses
on how to develop effective Crisis Prevention Plans. This workshop was
delivered to Santa Maria El Mirador nurses on September 8, 2000,
Nurses from the SE region (sponsored by the Door of Opportunity in
Artesia) on December 15, 2000, and at ResCare on January 19, 2001 –
with several participants from other agencies in Albuquerque.
Activity #3: The CONTRACTOR, in
collaboration with LTSD Training Unit Staff, shall deliver two trainer
certification sessions for each pre-service/orientation and level l
in-service health module for community programs. A total of 4 sessions
will be provided.
- Alejandro Moralez and Jennifer Thorne-Lehman delivered
train-the-trainer session for the SW and SE regions in Las Cruces on
October 11-13. This session covered the merged version of Basic and
Orientation Health modules, plus cross-waiver version of Level 1
Health. SWAT was certified as course mentor for these modules and
Continuum of Care has contracted with SWAT for additional train the
trainer sessions for southern NM.
- Alejandro Moralez, Judy Stevens, Carla Fedor and Jennifer
Thorne-Lehman conducted a train the trainer for the cross-waiver
version of Level 1 Health for the 3 northern regions in Albuquerque on
November 29 & 30, 2000.
- A second train-the-trainer for Level 1 Health was held in Santa
Fe/Espanola on April 5 & 6, 2001. Three trainers were certified,
one more began the process and as a side benefit, 16 staff of Las
Cumbres met the competencies for the course.
- A trainer was certified at Mentor, and another at Las Cumbres for
both (Pre-Service) Basic and Orientation Level Health modules.
Certification of the Mentor trainer required multiple mentoring
sessions, including a session with Valerie Ford on positive approach
to providing feedback.
Activity #4: The CONTRACTOR shall continue
to disseminate CHUMS upon request of agencies or interdisciplinary
teams.
- 845 CHUMS have been disseminated from 7/1/00 – 12/31/00. January
1, 1001 – June 30, 2001 510 Chums were distributed statewide.
- A supply of CHUMS provided to nurse case managers of the Medically
Fragile Program at their annual meeting 4/4/01.
Activity #5: The CONTRACTOR shall respond
to requests for information, training and/or consultation on an ongoing
basis, utilizing Regional Consultants for these activities whenever
appropriate.
- Dr. Aceves participated on the SEAD project advisory group December
14, 2000 and the MCH Collaborative on September 27, 2000.
- Dr. Burke provided consultation in the southern regions as follows:
parental training for child with tourette’s, assisted parent of
child with sever LD to prepare for IEP meeting, helped family prepare
for transition from high school to adult services, advice to team with
guardianship issues for an adult with schizophrenia, provided
information about DNR orders for mother of adult with DD and
significant health issues, training for a family regarding an adult
with ADHD, consulted with a team regarding baclofen pumps and referred
to appropriate specialist, conducted a training for the school in
Columbus NM, assisted with 13 ECEP evaluations, consulted with
CMS regarding teen with newly recognized deafness, consulted with LTSD
SW Regional Office regarding doctor – team communication issues in
Alamogordo, consulted with Tresco regarding expected death client with
terminal condition, consulted with Tresco regarding medication renewal
and annual exams needed for 2 clients, follow up with a family of
child diagnosed with autism, family with 5 year old with severe
speech delays, consulted with IDTs on 12 different individuals between
2/15/01 – 6/30/01, consulted with guardian regarding 2 individuals
about health decisions and staffing needs.
- Dr. Burke presented at NM Highlands University to social work
students on cultural sensitivity in dealing with families of those
who have disabilities.
- Dr. Bouquin consulted with three families from the NE region.
- Judy Liesveld CNP consulted with one family and also presented a
workshop on prevention of aspiration pneumonia for a home operated in
Gallup by Tohatchi. On 2/1/01 she met with Barbara Bragg and Charlene
Cain-Tholund at the NW Regional office.
- Alejandro Moralez, Analissa Watkins and Jennifer Thorne-Lehman
presented a ½ day workshop on Health Decisions for Santa Maria El
Mirador on 1/31/01.
- Alejandro Moralez is scheduled to mentor Ron Olguin RN of
Residential Resorts in delivery of the Pre-Service Health module.
- Dr. Aceves & Jennifer Thorne-Lehman provided training for nurse
case managers of the Medically Fragile Program on 4/4/01 on the topics
of Advance Directives and DNR orders, guardianship, seizure disorders,
and considerations when serving adults on the MF Waiver.
- Dr. Witemeyer provided consultation to 9 teams and 4 families.
- Dr. Benton provided consultation to 2 teams in the METRO region.
- Alejandro Moralez delivered the Pre-Service Health module at
Residential Resorts on 2/20/01.
Activity #6: The CONTRACTOR shall
provide facilitation and/or mediation for interdisciplinary teams in
distress, upon request, and agreement to participate, by the entire
team. Requests and intervention plans will be coordinated with the LTSD
Training Unit and the DRP unit to ensure that the Division’s resources
are accessed when appropriate.
- Two meetings were held with IAA/DRP unit to clarify roles related to
team mediation. IAA/DRP shared their brochure with Continuum of Care
– and Continuum of Care has begun to develop a brochure about our
services. We agreed that in general IAA/DRP will deliver team
facilitation when conflict is limited to a single IDT, but that in
situations where conflict is multi-agency and affecting multiple teams
that Continuum of Care would mediate. However Continuum of Care
received a referral regarding a single IDT which was referred to us
because of extreme distrust of the state on the part of the family
guardian. We negotiated a protocol for such instances. (See attached
document).
- Held several sessions with Alta Mira respite staff assisting them to
develop effective ways to resolve conflict and work together
effectively. This led to consultation with the executive director
regarding internal communication issues which in turn lead to
Constructive Feedback and Empathic Listening training for the entire
staff (4 full day sessions to allow all to participate).
- Planned and held a two-day team building event with staff of the SW
Regional Office. Feedback immediately after the event was quite
positive. However, Valerie later provided additional consultation to
LTSD staff regarding continuing conflict in that office.
- Facilitated a one and one-half day "Open space" planning
sessions with the staff and board of NM Arc.
- Conducted follow up calls to Farmington mediation participants –
who do not wish to pursue further mediation at this time.
- Conducted a 5 hour Vision Workshop with CDD managers to kick off
their strategic planning process. Facilitated multiple
strategic planning sessions for CDD as a follow up.
- Facilitated several meetings with Carrie Tingley Hospital and Salud
MCOs to develop protocols for discharge planning for children with TBI.
- Conducted first mediation session with IDT in the Espanola area at
Visions Case Management on 2/1/01. Second session 2/15/01.
- Provided consultation to director of ECEP regarding internal staff
conflict issues on that multidisciplinary team.
- Conducted multi-party mediation session with Otero County Arc and
Sun Country Case Management May 8 & 9, 2001.
- Conducted strategic planning meeting for EASI on 6/19/01.
Activity #7: The CONTRACTOR shall
coordinate and facilitate the Health Decisions Resource Team, which
provides assistance to interdisciplinary teams faced with complex and/or
ethically charged health decisions. The CONTRACTOR shall
coordinate with the DEPARTMENT to clarify the role of Continuum
of Care in the coordination and provision of training to
Interdisciplinary teams regarding health decision related issues.
- Dr. Aceves presented on bio-ethics at the "refresher"
training for members of the HDR team held August 9th, 2000.
Tara Ford presented on the UHDA statute and related legal issues. The
group practiced with case examples.
- Dr. Witemeyer provided bio-medical ethics consults on 7/6/00,
7/20/00, 8/2/00, and 8/14/00. She carried the UNM ethics pager from
July 31 – August 7, 2000. She attended UNM ethics committee meetings
on 7/24/00, 8/14/00, 8/28/00, 9/11/00, 9/25/00, 10/23, 1/22, 3/26,
6/25.. She attended St. Joseph Hospital ethics committee meetings
on 7/7/00, 8/4/00, 10/6/00, 12/1/00, 1/5/01, 2/2, 4/6. Valerie
Ford also participated in the ethics committee for St. Joseph
Hospital. Ms. Ford also provided consultation to the President of this
committee regarding meeting format issues.
- HDR meeting was held January 24, 2001 to review amendment proposed
to the UHDA in the 2001 Legislative session as advocated by Protection
& Advocacy. Additional HDR meetings held 4/18/01 and 6/30/01.
- Jennifer Thorne-Lehman and Valerie Ford had two meetings with staff
of the IAA/DRP Unit of LTSD, (in addition to email correspondence) to
clarify roles related to health decision support to teams and related
training. Ingrid Nelson of the IAA/DRP now participates regularly in
HDR activities, but Continuum of Care is still taking the lead on
training while the IAA/DRP continue to enhance their knowledge and
skills in this area.
- Valerie Ford and Dr. Aceves met with the chair of the ethics
committee for Presbyterian Hospital to explain supports available from
HDR. This led to a presentation delivered by Valerie Ford and Jennifer
Thorne-Lehman to the entire committee on 11/21/00.
OUTCOME 4- TRAINING AND TECHNICAL ASSISTANCE TO CASE
MANAGER. Case managers shall have ongoing access to opportunities for
training and technical assistance that enhances service delivery to
individuals served and meets the training requirements of the Long Term
Services Division.
Activity #1: The CONTRACTOR shall arrange
and/or deliver approved competency based training to case managers, upon
request of case management agencies and/or the LTSD Training
Coordinator. The CONTRACTOR may provide services directly and/or
through subcontracts to outside trainers, upon approval of the LTSD
Training Coordinator. The applicable curriculums are as follows:
- Rights and Advocacy
- Facilitating for Results
- Communication
- Challenging Behavior
- Health (all levels)
- Effective Advocacy Strategies for IDTs
- Rights and Advocacy, Challenging Behavior, Effective Advocacy
Strategies for IDTs & Communication – none requested by LTSD
- Facilitating for Results: Alejandro Moralez delivered this two day
workshop August 7&8 in Roswell, October 11 & 12 in Las
Cruces. The session scheduled in Roswell for February has been
postponed by LTSD. Delivered this workshop in Las Cruces March
22 & 23, 2001 and again 5/30 & 31, 2001. Mr. Moralez
went to Roswell to present this workshop on 4/25 & 26/01, but
only one participant showed up so the workshop was cancelled.
- Alejandro Moralez has completed Level 1 Health curriculum for case
managers related to competency A. He is waiting for Carla Fedor RN
to complete competency B section for submission of total package to
CAST for review. She is working on the competency achievement
questions, which is the last item for that section. This module
is being paginated and copied for CAST review and should be
submitted not later than 2nd week in July, 2001.
Activity #2: In collaboration with the LTSD
training unit, the CONTRACTOR shall provide coordination and
fiscal intermediary services to ensure that the DEPARTMENT has
access to trainers of level one in-service modules for case managers and
service coordinators. It will be the responsibility of the DEPARTMENT
to identify a cadre of trainers and to determine regional training needs
on a quarterly basis. In collaboration with the LTSD training unit, the CONTRACTOR
shall identify and coordinate with trainers from the list of eligible
trainers and to provide payment for services. Payment will be made in
the amount of $500.00 per course day. Funds in the amount of $76,800 are
allocated, and shall be reserved for, completion of this activity.
$69,l20.00 will be utilized for reimbursement to trainers; $7,680.00
will be applied to the l0% indirect.
- We have contracted with SWAT at Tresco for $13,750 to arrange or
conduct train the trainer session for "Team Advocacy",
"Traumatic Brian Injury", and cross Waiver versions of all
three health modules. In addition they will arrange and deliver three
one day sessions of "Positive Team Approach" and "Team
Advocacy" and contract for mediation in their region as needed.
- We have contracted with Adelante for $19,930 to arrange or conduct
five train the trainer sessions (one per region) for "Positive
Team Approach", three train the trainer sessions (one per
northern region) of "Team Advocacy" and "Traumatic
Brain Injury". In addition they will deliver three Participatory
Communication workshops (one per northern region). So far they have
completed the "Team Advocacy" trainer session in Grants,
Santa Fe and Albuquerque and the "TBI" trainer session in
Albuquerque and Grants.
- We contracted with Kerry de Palma for $3200, for two days of case
manager training per quarter. So far she has only conducted one two
day session of Facilitating for Results held in October 2000.
Activity #3: In collaboration with the LTSD
training unit, the CONTRACTOR shall provide coordination and
fiscal intermediary services to ensure that the DEPARTMENT has
access to an authorized trainer of the level one in-service module for
case managers and service coordinators, pertaining to sexuality issues
for individuals with developmental disabilities. It will be the
responsibility of the DEPARTMENT to identify the trainer and to
determine regional training needs on a quarterly basis. It will be the
responsibility of the CONTRACTOR to provide payment for services.
Payment will be made in the amount of $600.00 per course day. The
subcontractor shall develop an annual schedule of training to provide l
training per quarter in each of the five regions of the Long Term
Services Division. Funds in the amount of $13,200.00 are utilized for
reimbursement to the trainer; $12,000.00 will be applied to the 10%
indirect.
- We contracted with Barbara Ludwig for $3,176.25 for five workshops
on sexuality by 6/30/01. So far she has conducted one of these
workshops in Taos on 1/9/01.
- We contracted with Jill Ryan for $3,176.25 to conduct five workshops
on sexuality by 6/30/01. She has not billed us for any training to
date.
Activity #4: The CONTRACTOR shall
participate, at the request of the DEPARTMENT on a workgroup to
review/revise the Level 2 in-service training requirements for case
managers.
- No workgroup meetings held to our knowledge.
Activity #5: The CONTRACTOR respond to
requests for health related information/consultation, utilizing Regional
Consultants as appropriate.
- Several of the consultations described above in Outcome 3, Activity
5 were referred by case managers.
- We are scheduled to give an overview of supports available through
Continuum of Care at the next staff meeting of Quality Case Management
on 2/20/01.
Activity #6: In collaboration with TEASC, the CONTRACTOR
shall develop and disseminate reference manuals related to management of
medical and mental health issues of persons with developmental
disabilities. The materials will be made available through the web site,
with hard copies available to each regional office. The purpose of the
manual is to provide case managers with information on congenital and/or
chronic health conditions experienced by the individuals they serve.
Table of contents will be negotiated with the LTSD Training Unit. Phase
II content by 6/2001. A trainer certificate session for supervisors, in
use of the web based reference manual, to occur 2/2001. The CONTRACTOR
will coordinate with the LTSD Training Unit for review and approval of
content prior to dissemination of materials.
- See Outcome 3, Activity 1 above.
Activity #7: The CONTRACTOR shall
provide technical assistance to relevant LTSD staff and/or contractors
regarding:
- Case manager roles in planning and documentation of medical
components of Individual Service Plans, including medical crisis
prevention plans and medical arrangement.
- Conflict resolution strategies.
- Valerie Ford has provided confidential consultation to various LTSD
staff regarding internal personnel conflicts.
- Jennifer Thorne-Lehman presented on the role of case managers in
Crisis Prevention Plans at the Metro quarterly meeting October 27,
2000.
- Jennifer Thorne-Lehman presented at the statewide Case Management
supervisors meeting on June 27, 2001 on the topics of Medical Crisis
Prevention Plans and Prevention of Aspiration Pneumonia.
OUTCOME 5 – COLLABORATION AND SUPPORT TO POLICY
MAKERS. Employees and/or designees of the Long Term Services division
will have access to specialized opinions, regarding physical and medical
health services to individuals with developmental disabilities to
support the ongoing functions of the Division.
Activity #1: The CONTRACTOR shall
assemble of team of University faculty and senior residents from family
practice, pediatrics, internal medicine or other related disciplines to
conduct the review of deaths.
Part A: The CONTRACTOR shall conduct a
review of death for individuals referred by the DEPARTMENT. The
review of events surrounding each death shall include:
- Physician progress notes,
- Physician orders,
- Nursing notes,
- Medical/Nursing histories,
- Outside Hospital records,
- Other relevant physician reports,
- X-ray and laboratory reports, and
- Autopsy findings.
The DEPARTMENT shall provide all documents
required for each review to the CONTRACTOR.
Part B: The CONTRACTOR shall prepare a
written report that addresses the following:
- Clinical cause of death,
- Antecedent clinical factors and conditions leading to the death,
and
- Identification and discussion of clinical factors that may have
reduced or increased the likelihood of death.
Part C: The CONTRACTOR will advise and
consult with DEPARTMENT staff designated for that purpose by the
Director of the Long Tern Services Division, and upon the specific
requests of the DEPARMENT, submit a written report regarding:
- Appropriateness of treatment and interventions provided the
individual that may have been related to the death, and
- systemic and/or programmic factors, including training issues,
identified in the death review that may reduce the likelihood or
risk of death to others receiving services funded by the Long Term
Service Division.
Part D: The CONTRACTOR shall provide
its written report on each death to the DEPARTMENT’S Division
of Health Improvement, Quality Assurance Bureau within sixty (60) days
of receipt of records on each death. The sixty-day requirement may be
extended and a time mutually agreed upon, when multiple deaths are
presented for review.
- Dr. Vogel has provided four written reports to DHI of the eight
reviews given to him so far this year. It is our understanding that an
invoice is being prepared regarding those reviews already completed.
- Four more were completed during the second half of the year; all
eight have now been billed through our contract.
Activity #2: The CONTRACTOR shall
provide training and/or consultation to enhance the awareness and
knowledge of medical care issues of DEPARTMENT staff
participating in the Community System Quality Review.
Activity #3: The CONTRACTOR shall
maintain regular communication regarding Continuum of Care activities
with relevant Division staff. The CONTRACTOR shall also provide
training, materials and/or consultation to the Division, regarding
medical issues, upon request, including sharing of relevant existing
materials with program managers for D&E, Medically Fragile Waiver,
and TBI.
- has represented Continuum of Care on the Disability and
Health Advisory Committee of DOH.
- Continuum of Care staff presented all aspects of our project to
Regional Office managers on 9/21/00.
- Met with the new DOH Medical Director, Dr. Pintz, and LTSD Director,
Ramona Flores-Lopez to update them on activities of this project on
6/20/01.
- Dr. Burke participated in LTSD regional meetings for nurses on 2/20
& 3/15.
Activity #4: The CONTRACTOR shall
participate on the Medicaid Long Term Managed Care Advisory Committee.
- Jennifer Thorne-Lehman sits on this committee – however the
scheduled meetings are often in conflict with other Continuum of Care
commitments and so she was only able to attend 2 of the monthly
meetings since July 2000. She would like to discuss with LTSD whether
this continues to be a priority. Given LTSD preference that she
continue to participate, Jennifer attended meetings of this group
February 22, March 22, April 26, and May 24, 2001.
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